My CMT Story
I was diagnosed with Charcot-Marie-Tooth disease a few years ago. This is a disease of the peripheral nerves that control muscles. Mine affects my lower legs specifically in the form of loss of muscle, nerve pain, muscle/nerve twitching. It is slowly progressive and currently incurable. I am lucky that my CMT is mild compared to many others. I see it as an opportunity that fitness is my career 😊 . Movement is medicine and I won’t let this hold me back. Since being diagnosed I have completed an Ironman (2.4 mile swim, 112 mile bike, 26.2). Anything is possible if you keep a positive attitude, stay consistent, and surround yourself with good people.
Hereditary Neuropathy Foundation (HNF) is a non-profit 501(c)3 organization which mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families with critical information to improve quality of life, and fund research that will lead to treatments and cures. If you want to read more on CMT or donate please visit their page.